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LexxiXhan

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Posts posted by LexxiXhan

  1. On 5/17/2020 at 11:06 AM, syrup37c said:

    I would like to find friends on this forum

    Hi @syrup37c

    Another nonbinary person here :)

    I'm also in the UK so our time zones might make it difficult to meet in real time, but I'd be very happy to chat and share resources or ideas with you by message (inworld or on here). Same for any other nonbinary folx* - I'd love to get a discussion going about good inworld nonbinary and intersectional spaces that aren't just about dating.

    *Feel free to send me a FR too

    • Like 2
    • Thanks 1
  2. Just now, Beth Macbain said:

    How are you?? Did they figure out what was going on?

    Erm...kinda...I have what I need to manage and monitor symptoms at home, and they've taken enough blood and samples to continue investigating and call me in for outpatient appointments as and when. The last 5 days have been pretty brutal, with an average of 2 hours sleep per night. I'm grateful and humbled by all the loving support I've had from people (including here!)...and pretty exhausted!

    I'll try to catch up a bit more in the next few days. In the meantime, love and hugs to all xx

    • Like 8
  3. 3 hours ago, Beth Macbain said:

    Please keep checking in with us

    They decided to keep me in overnight, to continue tests and scans tomorrow.

    I managed a couple of hours sleep before being woken at midnight for another blood pressure check (even higher than before), followed shortly after by a different medication. They'll be back to check its effect on bp soon, so I guess it's reassuring they're trying to find something that helps.

    It's hopeful the loss of vision in my eye won't be permanent. It seems like it might trace back to January when my emotional stress levels and survival threats kinda peaked, and progressed from there. Recent stuff hasn't helped, and it definitely feels like throwing up my hands and just getting medical care as first priority is where I need to be.

    In other news, I'm glad I missed the drama here! Love to all who need it xx

    • Like 7
  4. Am in hospital now. In CDU. I've been poked and prodded (not in the fun way), interrogated several times, all the tests (CT, BP, ECG etc) with more to come, some kid just stole a load of blood right out of my arm, had a heart specialist called in, more tests threatened..

    I wish I'd brought a book..

    • Sad 7
  5. Waiting on a call to go into hospital (not covid-related).

    I'd been thinking my eyesight had generally worsened a bit and planned to get it tested after lockdown. But then a week ago I realised I'd lost my central vision in my left eye. Yesterday I had a phone appointment with a GP who told me to either get an emergency appointment with an optometrist or go to A&E (ER). Had an appointment this morning and the optometrist has referred me to hospital to have the underlying cause investigated based on what he found.

    I tested my blood pressure with a kit I have at home, and the results might be skewed by lack of sleep, but came out as 184 systolic and 123 diastolic, indicating severe hypertension. The machine also reported possible cardiac arrhythmia.

    I just want to sleep, but I don't know when the hospital will call and I can't miss it. A nurse friend has told me to stay upright and avoid sudden head movements.

    • Sad 7
  6. 2 minutes ago, LittleMe Jewell said:

    I've been feeling like I'm in some sort of limbo, just getting by day by day, kinda just floating along.  I haven't felt like doing much of anything for quite a few days now.  I still log inworld each day, but tend to leave myself in the house while I go AFK and veg on the couch watching TV or reading. 

    Sometimes that is difficult as we only have one TV in the house -- neither of us ever felt the need for a second one - and my husband prefers to nap on the couch in front of the TV with all sorts of misc boring stuff on.  So when he's napping, I can either go watch whatever he has tuned the TV to, with the volume so low I can barely hear it anyway, or I can amuse myself at the computer. The comfy seats for reading are even in the family room and so reading elsewhere is not the same - if I'm not super comfortable, it is hard to stay focused on the book.  Reading the forums only occupies so much time.

     

    Honestly, I'd just go somewhere comfortable, like a makeshift bed-nest, and stream things to watch on whatever laptop, phone or device I have available.

    • Like 4
  7. Thank you to those who reminded me this is somewhere I can check in, even if I'm absorbed with things elsewhere ❤️

    I'm feeling a lot more stable after a rocky few days, and hitting a point of overwhelm that forced me to acknowledge what I can't control and accept the impact of everything that's been happening, and just trying to let it all wash over me, ride the swell, and hope for the best. I think I've found a safe shore, or at least enough of something to hold onto, thanks to the subtle pokes and reaching out of friends who are going through their own experiences. Sometimes just an offer of a hand to hold is enough.

    Wishing you all the warmest xx

    • Like 6
  8. 56 minutes ago, Seicher Rae said:

    It is difficult for me to understand the posts about loving families, as I have never experienced that, and while I have come to terms with a lot of my past, the basics being absent do leave lasting effects for those of us who have had to separate from family.

    *Hugs*

    Seeing so many posts across all social media, people talking about their families, makes me so conscious of it, especially now. I basically just have my kids (who are with me at the moment ❤️ ) and an aunt I'm not that close to. My 'chosen family' consists of a few RL friends and people I've become close to online, and they and my kids are the people that keep me going 💕

    • Like 6
  9. 1 hour ago, Seicher Rae said:

    I'm just wondering how you are doing Lexxi. I didn't know how to respond to this back on Sunday. You say you are going through some awful sh1t, but are embracing some pretty positive things... Hope you update us.

    Thank you for asking. Made me cry xx

    In short, there's a reason I didn't speak to my father for 20 years. After my brother's suicide I thought he'd learnt something, been jolted out of his self-serving delusion...because he was saying the right words and helping me out here and there...and to come to terms and allow myself to accept that possibility has been *****ing hard, moments convincing myself to have faith in him while in dangerous ideation and there were no other options, letting him be the one to save my life in that instance, and those little moments he's come through for me, the succession of them, were giving me the confidence to have a little more faith in him each time...and more faith in myself, to feel good about the things I've achieved in recent months, getting myself to a point where I know I can support myself after choosing to jump the abyss with _nothing_ but faith in myself, to have made it this far........aaaand, he just *****ed it up, and dropped me in it. Because he needed me to be 'unbroken', so he wouldn't have to feel guilty about the past.

    There's more, but that's been the thing that's had me reeling like I've been knocked for six, and having to pedal so much faster to deal with everything else.

    There have been positives, growth and healing, while in isolation, a whole stream of vibrant possibilities supported by self-affirmation, that I need to embrace more, and choose to, because I've been falling and sailing for a long time now, and there is always a new breeze or intuition to follow x

    “The green reed which bends in the wind is stronger than the mighty oak which breaks in a storm.” - Confucius

    • Like 2
    • Sad 3
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