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DiscordicDesire

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  1. oh. maybe I am misremembering. I remember it as way to fill aquarium
  2. good morning! So, way back when 7 seas wad the go to fishing system. What is fishing like now in 2022? Is 7 Seas still the one? whats popular? thanks
  3. they might have bad time of a launch/adoption. playstation launching its new premium service roughly concurrently, and while there's correlation between user bases, it slants more favorably on Sony's side. but market movements hard to truly forecast, consumers fickle.
  4. Akane it took two years for FDA to decide. the structure of FDA does not understand how aggressive this disease is. it approved due to pressure from ACT for ALS legislation. scores upon scores upon scores died sooner than needed even so unless drugged fully cleared, insurance wont cover it. It is horror compounded upon horror. FDA has previously refused to acknowledge the work of the ROAR team because they operate out of Saudi Arabia. Politics is played with valuable metanalysis. This is why I am a Fury. This is why I am a Valkyrie. The injustice, the lack of equitable action. Reading the stories of those that fell before me, and knowing that I will leave wreckage when I pass.
  5. Polenth, we have been informing for 30 years through countless deaths and we cannot penetrate consciousness. we are deliberately ignored in the US. I am at year 2 almost and time already running out after year 2. I will die before I see meaningful change. Let that sink in.
  6. As member of NAMI, that is year-round not just May. there are initiatives to support mental health throughout the year, a number of support phone numbers, and nonprofits supporting mental health throughout nation. I am a member of that community as well, unfortunately for me, ALS has one organization, oh and the ice bucket trend that already faded from public mind. That is what I am trying to drive home in minds. We are among the most underfunded illness communities, among most unacknowledged Because of erroneous outdated beliefs about this illness.
  7. Did you know ALS has no effective treatments? Did you know the prognosis is 100% terminal in every case? Did you know that the ALS Association struggles to get funding in its own awareness month? Did you know the ACS receive the majority of non profit funding every month? How can the ALS community stand a chance when our own awareness month gets denied to us. I am sorry if cancer has affected you, But know this, ALS is a genetic disease, Every generation has more and more cases, with every passing year. A way to halt progression must be found before the genetic code spreads too wide. The ALS Assocation's SL group dwindled because no one saw us, and then the members kept dying without hope. Feel the horror of that, an SL group shutting down because its members all are dead or too disabled to log in ever again. too busy dying. But feel free to ignore us, just like everyone else. Why am I cynical? because us being scrappy underrdog has failed our community. The US has known about ALS since Lou Gehrig. we are nearing a century of cases rising. The reason of denying research priority rarity no longer valid. Thanks for reading. Please do not respond if you only seek to argue.
  8. So I didn't see this referenced in the thread, and maybe it misses the point. But this is the strategy I use is this: I look at the fatpack, I count what is in it, I divide that number by the cost to get cost per item in the pack. I then identify how many of the variations I would wear, and compare the cost per item of the ones I want against cost buying separately, if it costs more I get fatpack, if its less I buy individually. Well there's the added question if item is worth what its being sold for individually in my estimation. but this strategy has helped me, and I hope it helps others too.
  9. Hello wonderful persons! I just got back after long absence. I just acquired a mesh body and head. But Im wondering about skins? Who are the HQ makers these days? And where would I go for porcelain doll type skin (whole and cracked) these days? Ciao!
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