Marigold Devin Posted March 9, 2020 Share Posted March 9, 2020 1 hour ago, Cindy Evanier said: How do I feel today? Its going to be a funny old week. Today I get to finally pick up my motorbility car. Trust me to choose a car that is normally made as a van and so you have to wait for the manufacturers to produce their run of vans before they do a short run of the car version. So when I ordered it in September the estimation was December and here we are in March 🙄 With my condition walking changes daily, sometimes hourly. So this large car will give me the option of taking more than just the fold up wheelchair out just in case. I can pretty much take everything from a stick to a mobility scooter (if I had one) all at once and just use whatever I need at the time. Plus all my kids at once and the dog. This I am excited about. Also today my next door neighbours start their new kitchen extension which will mean noise and disruption for a couple of weeks and possibly nowhere to even park the new car. Tomorrow however, my new windows and doors are being fitted which will be great when done. Then we get to Friday which is Ki's funeral. It seems a long time (3 weeks) to have waited but knowing him and his warped sense of humour he would get a kick out of the date being Friday 13th. At least I know I have you guys to help me limp through what will be an interesting week. I also apologise that I haven't had it in me to reach out to others in the thread over the last couple of weeks other than mostly reaction buttons (even if there is no flipping hug) Please know I do care and I am reading and empathising with you. Your positivity is always a tonic to me, Cindy. Extra good wishes to you for these next couple of weeks, with all the works on the houses, and your man's funeral. A full moon and Friday 13th due in one week. Buckle up people, it's going to be a bumpy ride!! (And thank you all for getting me through yesterday. I had a sleeping pill as a last resort and while am groggy this morning, it has left me with dulled hearing too, and for that I am grateful.) 5 Link to comment Share on other sites More sharing options...
Panteleeva Posted March 9, 2020 Share Posted March 9, 2020 (edited) Today is my mothers B-Day. Today she recieved many calls with B-Day wishes..BUT some of her friends are always mention ME,and while cionversation thay mention all ma fails and what a hero my mom is to raise the useless eww like me. If you say b-day wishes to a person,why you need mentionher kid?they need to realize that my life is not their ucking business,even if i know what a sh.t my mother always told them about me my whole life, no matter what i do. Edited March 9, 2020 by Panteleeva 10 Link to comment Share on other sites More sharing options...
Seicher Rae Posted March 9, 2020 Share Posted March 9, 2020 @Panteleeva I grew up in an abusive family situation, too. Different from yours, but abusive. It breaks my heart to read your posts, but I'm very happy for you that you DO post, that you have a place to do so, and I hope you keep doing it. You need to know you ARE BEING HEARD. I know how important it is to know you are being heard. I also hope that in your first life that you have access to other people, professionals, who can help you through the damage. People have to take a test to drive a car, and yet any idiot can breed and "raise" children... smh. 7 2 Link to comment Share on other sites More sharing options...
kali Wylder Posted March 9, 2020 Share Posted March 9, 2020 10 hours ago, Cindy Evanier said: apologise that I haven't had it in me to reach out to others in the thread over the last couple of weeks other than mostly reaction buttons (even if there is no flipping hug) Please know I do care and I am reading and empathising with you. You just need to take care of you, @Cindy Evanier. I've been unable to post much too, and I don't even have a good reason! But I care about you all in this thread, so much, and I hope you know it. 5 1 Link to comment Share on other sites More sharing options...
LittleMe Jewell Posted March 9, 2020 Share Posted March 9, 2020 11 hours ago, Cindy Evanier said: At least I know I have you guys to help me limp through what will be an interesting week. I also apologise that I haven't had it in me to reach out to others in the thread over the last couple of weeks other than mostly reaction buttons (even if there is no flipping hug) Please know I do care and I am reading and empathising with you. You do whatever you need for you. This is a rough time for you and we all know it. There are plenty of us that can respond to the others, though I must admit that in thinking about it I'm actually really bad at responding other than reactions or replies back to comments directed at me - I need to work on that. Anyway, bunches of Hugs. And YAY about the van -- finally, huh !!! 3 2 Link to comment Share on other sites More sharing options...
LittleMe Jewell Posted March 9, 2020 Share Posted March 9, 2020 6 hours ago, Panteleeva said: Today is my mothers B-Day. Today she recieved many calls with B-Day wishes..BUT some of her friends are always mention ME,and while cionversation thay mention all ma fails and what a hero my mom is to raise the useless eww like me. If you say b-day wishes to a person,why you need mentionher kid?they need to realize that my life is not their ucking business,even if i know what a sh.t my mother always told them about me my whole life, no matter what i do. I grew up with a lot of verbal abuse from one of my stepfathers, though luckily that relationship was short-lived. Mostly what I had to deal with was just an emotionally unavailable mother and too many stepfathers. I can't even imagine what it would have been like to have had that verbal abuse throughout my entire life. I'm truly so sorry you have that in your life. Hugs to help you deal. 5 1 Link to comment Share on other sites More sharing options...
roseelvira Posted March 9, 2020 Share Posted March 9, 2020 Sweet gentle Cindy holding and hugging you tightly .Know we are all with you in spirit, in our hearts, thoughts and prayers. Take time for you as long as it takes and if you need anyting let us know ... we are here for you . gentle beautiful one... Know we walk with you at this time ,,,,,, hugs hugs hugs love 5 1 Link to comment Share on other sites More sharing options...
Madelaine McMasters Posted March 9, 2020 Share Posted March 9, 2020 14 hours ago, Marigold Devin said: it has left me with dulled hearing too ...SETS YOU ON FIRE 1 7 Link to comment Share on other sites More sharing options...
MrsSeren Posted March 10, 2020 Share Posted March 10, 2020 In last 2 hours; I shook off a killer migraine from hell as had since 2am UK time last night and finally feel like myself again. So spent most of day offline and trying to get back to myself which I eventually did. 9 Link to comment Share on other sites More sharing options...
Cindy Evanier Posted March 10, 2020 Share Posted March 10, 2020 Well I picked up my car. OMG he is an absolute beast of a car. I have named him Virgil. (Anyone who knows my beloved football team will understand why) I can't even go test him properly today because the window fitters are due any moment. I am trying to get a chance to log into SL. Apparently the Progency peeps decided to visit the opening of the event I am on the team for so I need to take me turn watching out there 🙄 I didn't sleep well. I think subconsciously I expected someone to try and steal Virgil in the middle of the night lol. My back has decided I did too much yesterday; walking and moving stuff ready for the windows and door to be fitted. So that means I have taken a big pink painkiller. I actually need to go buy toilet paper ready for my visit to the Uni child at the weekend. (Mums care package time) I have also run out of CBD oil. I don't really want to put myself at risk around people right now. My immune system has enough issues with the MS without this stupid virus hanging around. A surgeon at my local hospital just got diagnosed. It makes me mad. He went away to Italy then came back and went to work in a hospital of all places. 🙄 I wasn't scared about it until you find out about idiots like that who should know better. 8 Link to comment Share on other sites More sharing options...
Garnet Psaltery Posted March 10, 2020 Share Posted March 10, 2020 3 hours ago, Cindy Evanier said: Well I picked up my car. OMG he is an absolute beast of a car. I have named him Virgil. (Anyone who knows my beloved football team will understand why) I can't even go test him properly today because the window fitters are due any moment. I am trying to get a chance to log into SL. Apparently the Progency peeps decided to visit the opening of the event I am on the team for so I need to take me turn watching out there 🙄 I didn't sleep well. I think subconsciously I expected someone to try and steal Virgil in the middle of the night lol. My back has decided I did too much yesterday; walking and moving stuff ready for the windows and door to be fitted. So that means I have taken a big pink painkiller. I actually need to go buy toilet paper ready for my visit to the Uni child at the weekend. (Mums care package time) I have also run out of CBD oil. I don't really want to put myself at risk around people right now. My immune system has enough issues with the MS without this stupid virus hanging around. A surgeon at my local hospital just got diagnosed. It makes me mad. He went away to Italy then came back and went to work in a hospital of all places. 🙄 I wasn't scared about it until you find out about idiots like that who should know better. Glad you got Virgil. Shame about the surgeon; I'm afraid they often believe they are above the common race of humankind. 4 Link to comment Share on other sites More sharing options...
Dano Seale Posted March 10, 2020 Share Posted March 10, 2020 4 hours ago, Cindy Evanier said: I didn't sleep well. I think subconsciously I expected someone to try and steal Virgil in the middle of the night lol. It's the National pastime of fans of your "beloved football team".....what did you expect? 😄 Link to comment Share on other sites More sharing options...
Ajay McDowwll Posted March 10, 2020 Share Posted March 10, 2020 I'm hanging in there. Still no home internet, but I'm cautiously optimistic after talking with Spectrum (yet again) and also engaging with the Twitter "@AskSpectrum" rep. When it was just my entertainment/ leisure activities it was aggravating, but my son mentioned today that the lack of internet is keeping him from doing his online assignments as well as keeping him from being able to do his stuff for Florida Virtual Schools. When I shared that with Spectrum, progress appeared to start to be made. It perhaps didn't hurt that I mentioned I'd looked at Frontier, as that's also available in our area, but I didn't want to change a service I'd had since 2002... Fingers crossed that my life goes back to "normal" for me this evening, and I'm able to buy my stupid KittyCatS! some food, because I just got an alert that they're out 😕 If that's the worst thing that happens to me this week, I'll take it. 7 Link to comment Share on other sites More sharing options...
Cindy Evanier Posted March 10, 2020 Share Posted March 10, 2020 (edited) 3 hours ago, Dano Seale said: It's the National pastime of fans of your "beloved football team".....what did you expect? 😄 rolls her eyes and yawns I hope your cheap shot sterotyping bites you in the ass one day. This is not the time or the thread for it Edited March 10, 2020 by Cindy Evanier 3 1 Link to comment Share on other sites More sharing options...
Pamela Galli Posted March 10, 2020 Share Posted March 10, 2020 Anybody these days who is not depressed and/or freaked out is not paying attention. 10 Link to comment Share on other sites More sharing options...
kali Wylder Posted March 10, 2020 Share Posted March 10, 2020 27 minutes ago, Pamela Galli said: Anybody these days who is not depressed and/or freaked out is not paying attention. Ain't that the truth! 2 Link to comment Share on other sites More sharing options...
Rhonda Huntress Posted March 10, 2020 Share Posted March 10, 2020 If you can keep your head while those about you are losing theirs you haven't fully grasped the situation. or something like that. 4 3 Link to comment Share on other sites More sharing options...
Ajay McDowwll Posted March 10, 2020 Share Posted March 10, 2020 Oh happy day, according to my husband we have internet at home again -- woohoo!!!! This has perked me up immeasurably. It's the little things, sometimes... because the larger ones are often out of our control. 8 Link to comment Share on other sites More sharing options...
Pamela Galli Posted March 10, 2020 Share Posted March 10, 2020 6 minutes ago, Ajay McDowwll said: Oh happy day, according to my husband we have internet at home again -- woohoo!!!! This has perked me up immeasurably. It's the little things, sometimes... because the larger ones are often out of our control. It’s not little, it’s everything! Please God let there still be TV and internet. 3 1 Link to comment Share on other sites More sharing options...
Ajay McDowwll Posted March 10, 2020 Share Posted March 10, 2020 10 minutes ago, Pamela Galli said: It’s not little, it’s everything! Please God let there still be TV and internet. Amen to that. I had to actually leave my house this weekend. Not that this is a terrible thing by any means, but I prefer for it to be a choice rather than a "I am climbing the walls and MUST GET OUT OF HERE, pandemics be hanged!" kind of moment. 2 Link to comment Share on other sites More sharing options...
Pamela Galli Posted March 10, 2020 Share Posted March 10, 2020 And we are lucky because we can escape to our virtual universe. 4 Link to comment Share on other sites More sharing options...
Selene Gregoire Posted March 10, 2020 Share Posted March 10, 2020 50 minutes ago, Ajay McDowwll said: Amen to that. I had to actually leave my house this weekend. Not that this is a terrible thing by any means, but I prefer for it to be a choice rather than a "I am climbing the walls and MUST GET OUT OF HERE, pandemics be hanged!" kind of moment. You have those moments, too? 3 3 Link to comment Share on other sites More sharing options...
Ajay McDowwll Posted March 10, 2020 Share Posted March 10, 2020 21 minutes ago, Selene Gregoire said: You have those moments, too? Yep! although we don't have a snow painting problem, because Florida LOL... but sometimes I just HAVE to get out 🙂 1 Link to comment Share on other sites More sharing options...
Selene Gregoire Posted March 10, 2020 Share Posted March 10, 2020 19 minutes ago, Ajay McDowwll said: Yep! although we don't have a snow painting problem, because Florida LOL... but sometimes I just HAVE to get out 🙂 1 1 Link to comment Share on other sites More sharing options...
roseelvira Posted March 10, 2020 Share Posted March 10, 2020 (edited) Hubby very tired still on 3 liters oxygen. Occupational theripist comming here so we do not have to uber in to lunng rehab today. I am grateful but tired so tired i am too tired to sleep... He is napping so i am on line trying to catch up and read everyting i missed over the past weeks. I was shocked to realize we are really in March and it is the 10 th already ,,,,, ikr ,,,,, He is on oxygen 24/7 . We have the portable tanks of oxygen and a big thing that looks like a portable heater call the oxygenator it sucks in the air from the room and pumps pure oxygen into the tubing and nose canular ,,, sorry about spelling ,,,, so and the tubing is thin so he can go from room to room without lugging a oxygen canister . He was able this morning to walk from the bed to the bathroon wash his face and hands and walk back without the wheelchair and his oxygen saturation was good , so day by day ,,,, i feel like i am on auto pilot ,,,, so this afternoon they are going to try to lower it to 2 liters to see how he does and if he is not lung ready then back to 3 but it is all good . I keep seeing te reeses peanutbutter eggs comercial and boy i could eat a bag of thoses at this point ,,,, i know stress food ,,,, lolol hugs love to all Edited March 10, 2020 by roseelvira my spelling again ,,,,, 9 Link to comment Share on other sites More sharing options...
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